Pillow TalkⓇ - Questions and Answers About Sleep

Questions and Answers About Sleep

Kelly P
  • Female
  • Westville, NJ
  • United States
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I CANT WAKE UP! no matter what! please help!
14 Replies

Started this discussion. Last reply by mari underwood Apr 9, 2010.

 

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Kelly P posted a status
"Feel free to find me on FB (Kelly Snowboots) or insta (kellysnowboots). kellysnowboots on twitter too. hoping some of u see this:)"
Sep 19, 2014
Kelly P posted a status
"this page has not been active in a LONG time. but i need support & we need to spread more awareness. I feel alone."
Sep 19, 2014
Kelly P posted a status
"and now my N is back full force with a vengence :( so now the past 3 months has been reoccuring torture"
Sep 19, 2014
Kelly P posted a status
"hiiiii!!!!!!!!!!!!!! anyone still here???? i just signed on after so many years! been super busy with the baby, whos now 4!!"
Sep 19, 2014
Kelly P and Pamela Thomason are now friends
Sep 19, 2014
elizabeth commented on Kelly P's group Narcolepsy
"please can i talk here? i have been trying to talk in the other groups for people with sleep apnea and though that is what i have my biggest problem is with the eds not the apnea or my cpap.....none of them understand eds or taking nuvigil and i…"
Dec 1, 2010
Sharon D Smith commented on Kelly P's group Narcolepsy
"Join others with narcolepsy and our loved ones in this first-ever rally of support! Narcolepsy ImmunoChip Project www.refresheverything.com/narcolepsyimmunochipproject This Pepsi program awards grants monthly to the proposals that get the most…"
Jun 15, 2010
Raven Silva-Barton commented on Kelly P's group Narcolepsy
"Hi. I am new to the group.I used to think I had residual sleep issues from when I had mon, but that was 9 years ago. Ever since I was very young, I remember feeling paralysis upon waking, though I don't think it happens now, and it used to…"
Jun 2, 2010
Pamela Thomason commented on Kelly P's group Narcolepsy
"I've switched from provigil to the nuvigil and after a month must say the nuvigil is better. Less daily dosing for me and it lasts much longer and less side affects. I do experience "to the ground" cataplexy, which the nuvigil has had…"
May 12, 2010
Cynthia Lockey commented on Kelly P's group Narcolepsy
"Well I started 200 mgs of Provigil instead of the badaid of Ritalin...thankfully the insurance is willing to cover provigil now....lets just hope it works :)"
May 12, 2010
mari underwood replied to Kelly P's discussion I CANT WAKE UP! no matter what! please help!
"HI KELLY,CONGRATS ON THE PREGNANCY,I AM STILL HAVING PROBLEMS,7 ALARMS LATER,AND DO NOT HEAR THEM,I HAVE SO MANY DIFFERENT KINDS.I HAVE STILL BEEN SEEING MY DOC AT THE SLEEP CENTER,NOW ON DAY 2 WITH XYREM,NO CHANGES,NO SIDE EFFECTS EITHER,SO I WILL…"
Apr 9, 2010
Rob Bixler left a comment for Kelly P
"morin jersey girl , have a good day"
Apr 5, 2010
Kelly P commented on Kelly P's group Narcolepsy
"hii donna!! thnxx :) yeaa i was outta commission for quite sum time too. i was actually suppose to start xyrem then i found out soo i had to cancel lol. not drinkin beer when yaa want suxx but its worth it for sum things like for the baby... and for…"
Apr 5, 2010
Donna Talarico commented on Kelly P's group Narcolepsy
"Hi Kelly! I have been out of commission from the forums, etc. for a while. I just saw your reply about your news. Congrats! I was off Xyrem for a few months, simply because I never got my second refill and then I had just started dating someone and…"
Apr 1, 2010
Pamela Thomason commented on Kelly P's group Narcolepsy
"If anyone is interested in another narcolepsy forum, go to cataplexic.com and click on message board. I have belonged to this forum for several years and most of us are older narcoleptics, but we have a wealth of knowledge, support, help and…"
Mar 31, 2010
Pamela Thomason commented on Kelly P's group Narcolepsy
"I've had narcolepsy over forty years and have tried about everything. My sleep doc at Mayo, just increased my dose of ambien cr and for the first time I slept 8 hours in years. Feeling pretty good this morning. I was dosing 400 mg of provigil,…"
Mar 30, 2010

Profile Information

How many hours of sleep do you get at night?
6 hours
About Me:
Narcolepsy
Website:
http://www.kellysleepytales.com

Comment Wall (11 comments)

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At 9:22am on April 5, 2010, Rob Bixler said…
morin jersey girl , have a good day
At 9:29pm on November 19, 2009, Audra Forler said…
Kelly I love the statement you made on August 26th about how people tell you if you really wanted to stay awake you would! Thats awesome I wish I could get my family to read this...do you have a good support system with your family? I do a little. Sometimes they are considerate but other times they just stay mad at me.
At 9:22pm on November 19, 2009, Audra Forler gave Kelly P a gift
At 7:29pm on November 4, 2009, Kath said…
Hey Kelly,
Just went through a super sleepy October
Halloween had a 102 temp
Slept through my favorite holiday
Anyway, working on some attitude stuff
Am grate

ful, to report SSA application I started in December of 2000, is being delt with Sometimes it is just nice to know that I am NOT the full problem
New lawyers and judge are interested to know why my case was handled so poorly
I'm just glad to know it wasn't all in my head

Peace!
Kath
At 7:30pm on October 31, 2009, lauren said…
Pretty good! Thanks! I had candy for breakfast and candy for lunch, so its looking like a great halloween for me. I made costumes for myself (a deer) my boyfriend (a mountain man) and my dog (a dinosaur) so we are all looking pretty fabulous, I must say. Hope your halloween is great!

Oh and I like your website. There are not a whole lot of people with narcolepsy that are so open to talking about it.

Have a fun day
At 6:24pm on October 8, 2009, Rob Bixler said…
kelly your right , theres definintly alot of angry old hens in DS chicken coupe
At 5:27pm on October 8, 2009, Rob Bixler said…
hey Jersey girl, not much going on here in Indiana,as for me ,not much either.
same old shit. works down to 32hrs. and i am going thru withdraw, because i am a workcoholic. keeps my narc in check,and my cataplexy,don't no what to do with my extra time , so i sleep it away,might as well be pissing into a head wind,they are both a wast of time, but what can you do.life to short to worry about it.hey if like music and i no you do my friend one of the few i have left, had a ska /reggae band and alittle freestyle thrown in for effect.you might digg them ,i don't care for some of it, but all in all they were pretty good. they were big around here,even made 3 or 4 cds, they were called struttrain google them up and see what you think,they made a cd under a different name in NYC they were call unlikley alibi,www.struttrain.com . well this thing makes me sleepy you have a great nite. 2tired2type
At 4:02pm on October 6, 2009, Rob Bixler said…
sorry it took me so long to answer you about the roomie thing . i am the pantera guy from DS 2tired2type. ROCK ON Kelly P.
At 8:17am on October 1, 2009, Rob Bixler said…
osa is obstructive sleep apena.
hope you and your roomate , have solved you your house cleaning issues, ha ha
have a good day. at work gotta go . rob
 
 
 

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