"please can i talk here? i have been trying to talk in the other groups for people with sleep apnea and though that is what i have my biggest problem is with the eds not the apnea or my cpap.....none of them understand eds or taking nuvigil and i…"
"Hi. I am new to the group.I used to think I had residual sleep issues from when I had mon, but that was 9 years ago. Ever since I was very young, I remember feeling paralysis upon waking, though I don't think it happens now, and it used to…"
"I've switched from provigil to the nuvigil and after a month must say the nuvigil is better. Less daily dosing for me and it lasts much longer and less side affects. I do experience "to the ground" cataplexy, which the nuvigil has had…"
"HI KELLY,CONGRATS ON THE PREGNANCY,I AM STILL HAVING PROBLEMS,7 ALARMS LATER,AND DO NOT HEAR THEM,I HAVE SO MANY DIFFERENT KINDS.I HAVE STILL BEEN SEEING MY DOC AT THE SLEEP CENTER,NOW ON DAY 2 WITH XYREM,NO CHANGES,NO SIDE EFFECTS EITHER,SO I WILL…"
"hii donna!! thnxx :) yeaa i was outta commission for quite sum time too. i was actually suppose to start xyrem then i found out soo i had to cancel lol. not drinkin beer when yaa want suxx but its worth it for sum things like for the baby... and for…"
"Hi Kelly! I have been out of commission from the forums, etc. for a while. I just saw your reply about your news. Congrats! I was off Xyrem for a few months, simply because I never got my second refill and then I had just started dating someone and…"
"If anyone is interested in another narcolepsy forum, go to cataplexic.com and click on message board. I have belonged to this forum for several years and most of us are older narcoleptics, but we have a wealth of knowledge, support, help and…"
"I've had narcolepsy over forty years and have tried about everything. My sleep doc at Mayo, just increased my dose of ambien cr and for the first time I slept 8 hours in years. Feeling pretty good this morning. I was dosing 400 mg of provigil,…"
Kelly I love the statement you made on August 26th about how people tell you if you really wanted to stay awake you would! Thats awesome I wish I could get my family to read this...do you have a good support system with your family? I do a little. Sometimes they are considerate but other times they just stay mad at me.
Just went through a super sleepy October
Halloween had a 102 temp
Slept through my favorite holiday
Anyway, working on some attitude stuff
ful, to report SSA application I started in December of 2000, is being delt with Sometimes it is just nice to know that I am NOT the full problem
New lawyers and judge are interested to know why my case was handled so poorly
I'm just glad to know it wasn't all in my head
Pretty good! Thanks! I had candy for breakfast and candy for lunch, so its looking like a great halloween for me. I made costumes for myself (a deer) my boyfriend (a mountain man) and my dog (a dinosaur) so we are all looking pretty fabulous, I must say. Hope your halloween is great!
Oh and I like your website. There are not a whole lot of people with narcolepsy that are so open to talking about it.
hey Jersey girl, not much going on here in Indiana,as for me ,not much either.
same old shit. works down to 32hrs. and i am going thru withdraw, because i am a workcoholic. keeps my narc in check,and my cataplexy,don't no what to do with my extra time , so i sleep it away,might as well be pissing into a head wind,they are both a wast of time, but what can you do.life to short to worry about it.hey if like music and i no you do my friend one of the few i have left, had a ska /reggae band and alittle freestyle thrown in for effect.you might digg them ,i don't care for some of it, but all in all they were pretty good. they were big around here,even made 3 or 4 cds, they were called struttrain google them up and see what you think,they made a cd under a different name in NYC they were call unlikley alibi,www.struttrain.com . well this thing makes me sleepy you have a great nite. 2tired2type