I was recently diagnosed with narcolepsy and I am now in the process of figuring out how to effectively manage it. I'm still looking around for a sleep specialist in Pittsburgh, PA since I've come home from college (in Erie, PA). Also looking for any advice, support, or resources that anyone might offer to help. Especially interested in talking with someone who has the same disorder, in particular someone also in their mid-twenties, and would be willing to answer some questions and act as a comparison for myself (since I know no one else who has narcolepsy right now). Just found out about Ning too, so hoping to try this out : ). Thanks!
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Oh, i just read your about me... idk how far pitt. is in relation to philly but i just found a sleep disorder center in philly at one of their hospitals... checked out their website and seems like theyre pretty damn good. they had treatments on their site that they do i havent even heard of yet. i was goin to cooper hospital in voorhees but their sleep center isnt that good at all. i kinda hate my dr. lol. if u want i can give u more details if your interested and not too far away. my appt. is sept 17th so i could also let u know how they are..
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