Pillow TalkⓇ - Questions and Answers About Sleep

Questions and Answers About Sleep

Saraiah Naps
  • Female
  • Greenbelt, MD
  • United States
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Saraiah Naps's Friends

  • REM Runner
  • Kelly P

Saraiah Naps's Discussions

Sunday Feb.28 Support Group Meeting in Washington DC

Join us for a meeting of the People with Narcolepsy and Hypersomnia Support Group of the Greater Washington DC Area on Sunday, February 28th, 2010! We'll be meeting from 1pm - 1:45pm at the Martin…Continue

Started Feb 26, 2010

Support Group for people with Fatigue, Exhaustion, and Excessive Daytime Sleepiness - 1st meeting Sunday December 13th, 2009

Fatigue, Exhaustion, & Excessive Daytime Sleepiness (FEEDS) Support Groupof the Greater Washington DC AreaSunday December 13th, 20092:00pm – 5:00pmAt the home of Saraiah Naps*** Laurel Hill…Continue

Tags: support, group, excessive_daytime_sleepiness, fatigue, apnea

Started Dec 9, 2009

Dec. 27th 2pm Narcolepsy & Hypersomnia Support Group meets in Washington DC

Join us for the fifth meeting of the brand new People with Narcolepsy and Hypersomnia Support Group of the Greater Washington DC Area on Sunday, December 27th, 2009! We'll be meeting from 2pm -…Continue

Tags: DC, Washington, Group, Support

Started Dec 8, 2009

Saturday Nov 14: People With Narcolepsy & Hypersomnia Support Group meets in Wash DC

People with Narcolepsy and Hypersomnia Support Groupof the Greater Washington DC AreaSaturday November 14th, 2009 2:30pm - 5:15pmMt. Pleasant Neighborhood Library3160 16th St. N.W.Washington…Continue

Started Oct 31, 2009

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Latest Activity

Saraiah Naps posted a discussion

Sunday Feb.28 Support Group Meeting in Washington DC

Join us for a meeting of the People with Narcolepsy and Hypersomnia Support Group of the Greater Washington DC Area on Sunday, February 28th, 2010! We'll be meeting from 1pm - 1:45pm at the Martin Luther King, Jr Memorial Library in Room 221, and then continuing the meeting at a local (and inexpensive) restaurant when we lose the meeting room at 1:45pm. We are a group that is diverse in narcolepsy symptoms, treatment, treatment efficacy, ages, races, genders, professions, and the current…See More
Feb 26, 2010
Saraiah Naps replied to Ry's discussion Narcoleptics... where are you?
"Hey Ry, I'm afraid I'm outside of your age bracket, but just wanted to encourage you to start a support group for folks your age with narcolepsy in Pittsburgh. I started an in person support group for people with narcolepsy and…"
Jan 12, 2010
Saraiah Naps and REM Runner are now friends
Jan 11, 2010
Saraiah Naps posted discussions
Dec 9, 2009
Saraiah Naps posted a discussion

Saturday Nov 14: People With Narcolepsy & Hypersomnia Support Group meets in Wash DC

People with Narcolepsy and Hypersomnia Support Groupof the Greater Washington DC AreaSaturday November 14th, 2009 2:30pm - 5:15pmMt. Pleasant Neighborhood Library3160 16th St. N.W.Washington DC 20010202-671-0200 (Library phone number)Meeting Topic:  Presentations on new knowledge about narcolepsyby attendees of this year's national Narcolepsy Network patient conferenceWho and what should I bring to the meeting?1) People with narcolepsy and hypersomnia, and the people who love them, are welcome.…See More
Oct 31, 2009
Saraiah Naps replied to Saraiah Naps's discussion Greater Washington DC Area Support Group for People with Narcolepsy meets Sunday 10/25/09
"Hi Don, I am SO very sorry that I did not get your late Saturday night message in time to send you the info for the Oct group!! After getting only 2 hrs sleep on Friday night, I slept through all of my alarms this morning (Sunday) until my husband…"
Oct 25, 2009
Don replied to Saraiah Naps's discussion Greater Washington DC Area Support Group for People with Narcolepsy meets Sunday 10/25/09
"Hi, This is interesting to me. I would like to attend, but must say that I have a combination of sleep problems. That mostly seems to mean that my sleep pattern has nothing in common with normal ones. I stay up too late and get up late and sleep…"
Oct 25, 2009
Saraiah Naps posted a discussion

Greater Washington DC Area Support Group for People with Narcolepsy meets Sunday 10/25/09

The third meeting of the People with Narcolepsy & Hypersomnia of the Greater Washington DC Area Support Group will be this coming Sunday, October 25th, 2009.We especially welcome newcomers to our group! We are a diverse group in our ages, symptom profiles, genders, races, and lifestyles, and we manage to be helpful to one another while also having fun. We also welcome the people who love us PWN&H to join us. Please feel free to invite your parents, spouse, partner, friend, children,…See More
Oct 23, 2009
Kelly P left a comment for Saraiah Naps
"Hey Saraiah!! Thnxx for the comment =) So things have gotten better so far. I mean, im taking nuvigil now... theres days i only need 1 pill all day/nite, days i need a 2nd dose, got my ritalin now so days i need to take that too.... the one day i…"
Oct 1, 2009
Saraiah Naps left a comment for Kelly P
"Hey Kelly - I hope things are getting better lately - any luck in getting up in the morning? I've had to plug in my Sonic Boom bed shaker and get a Sonic Boom clock with two alarms, because I keep sleeping waaaayyy too late. Hope things are…"
Sep 23, 2009
Saraiah Naps and Kelly P are now friends
Sep 23, 2009
Saraiah Naps posted a discussion

Greater Washington DC Area Support Group for People with Narcolepsy meets Sunday 9/27/09

Greater Washington DC Area People with Narcolepsy Support Group MeetingPeople with Narcolepsy, and their Partners, Children, Family, and Friends: All are WelcomeSunday, September 27th2pm – 4:45pmWest End Neighborhood Public Library(a 3 minute walk from the Foggy Bottom Metro Station)1101 24th St NWWashington, DC 20037-1430(202) 724-8707 (library phone)We welcome kids and parents! Please RSVP if you are coming with small children, so that we have the opportunity to try to find childcare to…See More
Sep 23, 2009
Saraiah Naps replied to Kelly P's discussion I CANT WAKE UP! no matter what! please help!
"Hi Kelly, My experience is that the narcolepsy can disrupt sleep enough (disrupted in the sense that although we people with narcolepsy (PWN) sleep, the lack of the hormone hypocretin in our brains renders us unable to experience restorative deep…"
Sep 17, 2009
Saraiah Naps posted a discussion

Many great sources of information for People with Narcolepsy (PWN)

Reading over many of the posts here, I am aware of such desperation for so many. I've been there as recently as 4 days ago. Below are the URLs for four different forums that offer a tremendous wealth of information and experience from other people with narcolepsy. So, if this forum doesn't yet have the age and information that many folks are needing, come pick one of the four and check it out! Wherever you arrive among these forums, folks will be glad to see you.…See More
Sep 17, 2009

Profile Information

How many hours of sleep do you get at night?
8 hours
About Me:
Symptoms of Narcolepsy without cataplexy began 1990
Narcolepsy diagnosed 2009

I'm on a sleep disorders site and the max sleep time allowed is 8 hours?? I'm one of the 15% of narcoleptics who have comorbid hypersomnolence. Try 12 - 15 hours.

There is much more online support and knowledge waiting for you. Try these four forums if you haven't already:
http://www.narcolepsynetwork.org/ and click on "Online Community"
http://www.talkaboutsleep.com/narcolepsy/ and click on "Narcolepsy Message Boards"
http://www.teamidesign.com/pwn/index.html
http://www.dailystrength.org/c/Narcolepsy/support-group

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At 6:33am on October 1, 2009, Kelly P said…
Hey Saraiah!! Thnxx for the comment =) So things have gotten better so far. I mean, im taking nuvigil now... theres days i only need 1 pill all day/nite, days i need a 2nd dose, got my ritalin now so days i need to take that too.... the one day i had to make a wawa pit stop bc i almost fell asleep drivin 3x's, i was there for 1/2 hr. drinkin red bull & stretchin lol.
as for wakin up... thats gotten a tiny-bit better so far too. well, i had someone to help the past week and alone- its been maybe 5 days ..i woke up on time mabe 2x... but thats better than before!!! hehe.
i still get frustrated... idk why im takin 2 diff. meds. ..still doubling up... still drinkin coffee & red bull.... yet, still gettin sooo exhausted. i mean, its better than how it was (so far) and im very happy for that... i just cant wait till it can be 100% !! At least i found doctors i really like !! They were very good. im happy with them too.
How r things w./ youu ??? Hope all is well =)
talk soon. take care!!
 
 
 

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